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Frontotemporal dementias

Thanks to my good friends, Lynda and Veda from Gerringong in NSW, near Kiama, I have been alerted to the following resource on Frontotemporal Disorders. Do follow the link to the full article, but I...

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Global perspectives on dementia

ADI have a charter “I can live well with dementia’ – but still, no-one is telling us how to achieve it, or even that it is possible. For this International Charter to have any traction, people with...

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Safety vs autonomy in residential care

I’ve been asked to write from a consumer’s perspective about whether I think the views of people with dementia could influence the design of residential aged care, and if there is a difference between...

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Open letter to Group Homes Australia

After my blog yesterday, talking about safety vs autonomy, and my feelings about the traditional styles of residential care, I felt it important to also say, there are many in the sector wanting to...

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disAbility Rights and Dementia

My blog today consists of some quotes from a blog I read, about the rights of people with disAbilities, the World Health Organisation determination on Discrimination, and my thoughts on all of this in...

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What the hell is happening to my brain?

This may not be such a positive blog today! I have a private blog called ‘What the hell is happening to my brain?’, which many of you know is also the first part of the title of my book soon to be...

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Abstracts for #ADIBudapest2016 due in 9 days

There is just 9 days left to submit your abstracts for Alzheimer’s Disease International‘s leading global dementia conference. Have you got a bright idea you’d like to share, or some research you are...

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Changing the world… is it even possible?

It is indeed an honour to be listed as a State Finalist Australian of the Year 2016, and yet I feel strangely uncomfortable being named amongst this formidable group of Australians, or even being a...

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A win for all people with dementia

My book, What the hell happened to my brain?: Living beyond dementia was published recently in German. Whilst I was happy the rights were bought for it to be translated into German, I was very unhappy...

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Working in silos

It’s day 19 of Dementia Awareness Month in 2020, and although I started out this month, thinking that for my usual September daily blog series I would kickstart the #BanBPSD campaign again, I have...

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